Joe Hughes in "The A Word"
Joe Hughes, played by young actor Max Vento in his own little world, living out
the ordinary life of a little boy struggling to connect and understand the norms
of the society. Additionally dealing with his mother who will not even say he
has Autism and she prefers to say that he has The A Word.
The show titled The A Word written by Peter Bowker is about the
challenges of parenting a young child on the Autism spectrum before an official
diagnosis. The young little boy that is featured goes by Joe Hughes and has some
particular behaviours that are on the line between being on the spectrum and not
being on the spectrum. Upon watching the show, many viewers inquire if the actor
who played Joe has autism because the performance was so convincing and
well-done that it felt authentic to a majority of viewers. Upon a bit of
investigation, viewers quickly learn that Max Vento is the actor who plays Joe
and is not on the Autism Spectrum in real life. This is a bit shocking
considering that show-writer Peter Bowker is known for encouraging and avoiding
that actors with the disability play the character with the disability he is
writing. In this case he argued the contrary. In an interview with Mirror, part
of which is highlighted in
this
“Entertainment Daily” news article the screenwriter explains his reasoning in
saying “it was too big an ask for a six-year-old on the autistic spectrum to
imitate a whole range of emotions in keeping with the piece. By definition they
have difficulty processing and imitating”. His comment is clear and makes
logical sense, that by the nature of the condition it is difficult for
adolescent and adult actors on the spectrum to act out various roles in
connection to their disability, such a task would simply be overwhelming and
impossible for someone so young on the spectrum to handle. Therefore, in this
respect I can understand the choice that was made. Clearly the goal in casting
Max Vento for the role was not to take the role away from a capable actor on the
spectrum, rather it was an effort to respect the nature of the condition by
avoiding putting such a young actor on the spectrum in such a position long
before they are ready or able to handle it. The mere fact that this screenwriter
is known for advocating for the rights of actors and characters with
disabilities matching up demonstrates his knowledge of the subject and attention
to the delicate matter. Additionally, an
article
in “The Guardian” reveals the verdict of a father and his young daughter who is
on the Autism spectrum regarding the show. Their opinion about the show is that
it feels authentic for someone who is just close enough to the line of the
Autism spectrum that they do not have all the symptoms, but have enough troubles
that it affects their life. For Maya, the young daughter on the spectrum, the
most emotionally connecting piece of Joe’s character was the demonstration of
how he, like she does, feels isolated at his own birthday party. These sorts of
events are overwhelming for both Maya and Joe and for her to see a character on
screen portraying the way she feels made Maya feel a connection with someone,
which is a rare occurrence with this low on the spectrum Autism condition.
Another element that The A Word does a good job portraying according to this
father and daughter is the fear of labelling the child. Throughout the series
the fear of little Joe’s mom to name him as Autistic leads to a deep denial
where she prefers to say that Joe has the “A” word, meaning Autism because she
is afraid that in saying the word it will have a negative impact on him, when in
reality she is in denial of the situation.
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